Tina's Adventure
Originally created to share news around our craniotomy adventure, the focus of this blog has now shifted to the continuing progress of recovery, general thoughts on life and staying in touch with our great community of friends.
Tuesday, March 13, 2012
Future Corset
Monday, February 27, 2012
Millimetering Along
Thursday, February 2, 2012
Delaying Tactics (not even grand enough to be procrastination)
I’m at that stage of this project where I cleaned my hair brush and the toothbrush rack this morning and pondered whether any interesting insights or observations could be derived from the fact that my hair is curly enough to hold pencils and pens while I’m working. There aren’t. Back to work.
Sunday, January 29, 2012
Of Houses and Dreams
Thursday, January 26, 2012
Checkpoints
Tuesday, January 10, 2012
Puzzling
Interestingly, there are some kinds of thinking that are almost never affected, the ones that involve tricky human/organizational problems. They seem engaging and the solutions that emerge are pretty consistent, no matter the outcome of the morning brain check. That they remain engaging when the puzzles come and go is somehow related to the root issues, it seems: on the long period where no puzzles of any sort were possible, it was as if they didn’t exist, as my eyes sort of glossed over them in the newspaper or wherever they appeared. It's like the comics, where I still cannot collide the words and pictures to interpret them. Michael still shows me ones he thinks are funny, and sometimes I get it, but my attention and interest are never drawn there without some external intervention. The puzzles draw my attention and I can (mostly) do them now. It’s all weird. The NYT has a story today about the strain on marriages after traumatic brain injury, and includes a couple where a brain tumor affected the husband's personality (not positively), so I approached my morning brain-check today with an extra dollop of gratitude. It’s all mysterious, and really, looking back at what it could have been, fairly miraculous.
I’m in the end game struggles of trying to figure out if this new book will work--or not--and revisiting all the self-doubt that goes with this phase. Another part of this phase, at least for me, is the strange phenomenon of waking up with lists of words that don’t appear in the manuscript. This happened the last time and it’s happening now, too. Here’s today’s list of words: asphalt, convertible, cupcake, arctic, bothersome, pestilential. It varies by day and I have no clue what this is about. It seems harmless enough, so mostly they appear and float on by. Sometimes, I try to make sentences that encompass all the words. Here’s today’s thought using them: if your cupcake is bothersome while driving the convertible, may the asphalt be smooth and may you not encounter anything pestilential; if you do, may the arctic winds solve the problem.
Or something. Back to book-wrestling.
p.s. has anyone mastered how blogger decides to format posts? I'd prefer a consistent size and font and spacing, and cannot figure out how to achieve that, in either the old or new structure. Frustrating! The font size that finally appears has no relation to what I choose and the spacing seems beyond my control. Insights welcome.
Thursday, January 5, 2012
Music! Reading!
In the quiet of the break, with commitments in the outside world reduced dramatically, both music and some fiction crept back into my life. The absence of a soundtrack in our lives has been one our our hardest long-term adaptations; I’ve been pretty much unable to take much aural load and still get things done since the surgery. It’s especially hard for Michael, as in many ways, he connects with the world through NPR and music. Over the break, though, the combination of continuing small improvements and (I conjecture) being at home without external stimuli, I affirmatively felt like listening to music for the first time in ages. That leap empowered me to take another stab at reading fiction, and while that didn’t produce as big a step forward, every tiny bit of progress there always feels disproportionately important.
The music urge first surfaced doing puzzles with Shea, a traditional holiday activity. She always listens to something and has, in recent years, been characteristically generous in adapting to my inability to stay long in a room with much sound in it. This year, though, it just felt right to have music, and one thing led to another. Something must have been stirring around in the back recesses of my mind all along, as, in the oddity of the fact that I’d bought Michael five or six CDs for Christmas hadn’t struck any of us until we started listening together. It was a bonus gift for all of us.
As demands of external life pick up, the ability to pull that off is receding. But that’s ok with me--knowing the capacity is there, and it’s a matter of balance and how, not if, it’s possible is hugely encouraging. It is a nice way start to a new year. I hope yours has glimmers of promise and hope as well.